Stories

Life has been busy. Luke’s been back to work, on an annual yurt trip with his workmates, fishing, running, biking, skiing, racing – you name it. We had a good birthday weekend (the weekend between our b-days) in Montana with family and fun in mid-March. Though it was a fast trip, we packed in a…

A decade ago, Luke and I lived in Missoula, MT for a decade – also home to Snowbowl . Not only did we first meet on her slopes, but during the winter months a good piece of our lives revolved around the pitches of this mountain. There’s an undeniable, solid camaraderie amongst Snowbowl skiers. It…

 The week before this all started in mid-July, we were vacationing in Montana with family. At some point we found ourselves in Butte browsing at Murdocks. Luke found a must-have carhartt, burgundy wool, fleece-lined hat with both a brim and ear flaps. Not seasonally appropriate, but it did look like a perfect fall acquisition. He…

The impending January 27th MRI has come & gone – and the news is good! The initial tumor-free read was confirmed by UCSF late Wednesday evening. We are so gratefully relieved to have a reprieve. The weeks leading up to the recent MRI were shrouded in another severe headache, swelling at the surgery site and…

Upon getting his stapes removed and making the 3 week mark of required rest, Luke immediately donned his favorite apparel – skis. He took EB out, either downhill or cross-country skiing, for 6 days straight. Granted, at nearly 4 years old, EB is not known for overly long ski sessions, but it was a great…

Luke moved out of the neuro-ICU in the early afternoon, the day following surgery – to nearly the exact same room he occupied during his previous stay at UCSF. The normalcy and now innate knowledge of how things go, of protocol, of where to find doctor’s offices, pharmacies, admissions, the OR, ICU’s & bathrooms is…

 It’s hard to know where to start – sometimes feels like it’s been years instead of four months since life took this crazy turn. There have been a lot of seemingly unnecessary obstacles we’ve had to overcome during the last few weeks. The first included a change-of-date for Luke’s surgery, after we bought airline tickets…

Monday, November 3rd, brought Luke’s first follow-up MRI since the original resection. We opted to have it done semi-locally in Jackson, WY with a follow-up consult of the scan by UCSF. Despite the forewarnings about the aggressiveness of this horrible diagnosis ( glioblastoma multiforme – GBM IV ), we really anticipated that the first MRI…